Selected companies in the medical genetics industry sector
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Achondroplasia
www.lpaonline.org
AICH (Associazione Italiana Corea di Huntington)
Associazione Italiana Corea di Huntington - Romahttp://www.aichroma.com
Alliance of Genetic Support Group
www.medhelp.org/genetic
Alliance for Aging Research
www.agingresearch.org
Alpha-1 Antitrypsin Deficiency
www.alpha1.org
Algelman Syndrome
http://chem-faculty.ucsd.edu/harvey/asfsite
Alzheimer research Forum
www.alzforum.org
American Board of Genetic Counseling
www.faseb.org/genetics/abgc/abgcmenu.htm
American Board of Medical Genetics
www.faseb.org/genetics/abmg/abmgmenu.htm
The American Cancer Society
http://cancer.org
American College of Medical Genetics
www.faseb.org/genetics/acmg/acmgmenu.htm
American Hearth Association
www.amhrt.org
American Society of Human Genetics
www.faseb.org/genetics/ashg/ashgmenu.htm
Ataxias
www.ataxia.org
Biomednet
http://biomednet.com
The Biotechnology and Gene Therapy Web "Cite"
www.genebrowser.com
www.natx.com
Blood Disorders
www.thalassemia.org
Breast Cancer
www.natlbcc.org
www.mediconsult.com/breast/shareware/komen/bcf.html
Cancer Chemotherapy
http://artemis.unmc.edu:82/cancer
Cancer, General
http://cancer.org/frames.html
http://cancernet.nci.nih.gov/
Cancer Genome Anatomy Project (CGAP)
www.ncbi.nlm.nih.gov/CGAP/
Cerebral Palsy
www.ucpa.org
Charcot-Marie-Tooth Disease
www.charcot-marie-tooth.org
The Council of Regional Networks for Genetic Services (CORN)
www.cc.emory.edu/PEDIATRIC/corn/corn.htm
Click on the button: Contact Information"
Cystic Fibrosis
www.cff.org
DNA and Protein Analysis Toolkit, RUCS
www.rockefeller.edu/rucs/tookit/toolkit.html
Down Syndrome
www.nads.org
www.ndsccenter.org
www.ndss.org
ELSI (ethical, legal, social implications of human genome research)
www.nhgri.nih.gov/ELSI
European Agency for the Evaluation of Medicinal Products
www.eudra.org/emea.html
(EMEA = European Medicines Evaluation Agency)
Food and Drug Administration (FDA)
www.fda.gov
Fragile X Syndrome
www.fraxa.org
www.medhelp.org/www/fragilex
Gaucher Disease
www.gaucherdisease.org
GeneClinics: Medical Genetics Knowledge Base - Home Page
www.geneclinics.org
Gene Tests (An on-line international directory of clinical and research genetic laboratories, that provide genetic testing)
www.genetests.org
GeneNet: A Worldwide Resource for Genetics
www.genenet.com
Genetic Alliance
www.geneticalliance.org
The Genetics Professional Home Page / Genetics Education Center
www.kumc.edu/gec/prof/genecntr.html
www.kumc.edu/gec/geneinfo.html
www.faseb.org/genetics
Genomics:Legislation and Regulation
www.phrma.org/genomics/legislation/index.html
Health Data Corp
www.healthgate.com
Hearth Disease
www.americanhearth.org
www.americanheart.org/catalog/Scientific_catpage87.html
HealthGate Data Corp.
The Health Network
www.ahn.com
HealthWorld Online
healthy.net/index.html
Hemophilia
www.hemophilia.org
Hox Genes: Regulators of animal design (The homeobox genes)
www.bi.bbsrc.ac.uk/world/sci4Alll/gaunt/dud/gaunt.html
Howard Hughes Medical Institute
www.hhmi.org
Human fertilisation and Embryology Authority (UK) (HFEA)
www.open.gov.uk
Search the index for HFEA
Human Genetics Advisory Commission (UK)
www.dti.gov/hgac
The Human Genome Epidemiology Network ( HuGE Net ): Contains information on the epidemiologic aspects of human genesi
www.cdc.gov/genetics/hugenet/
The Human Genome Organization
www.gene.ucl.ac.uk/hugo/
Human Genome Reseatch at the Department of Energy
http://www.er.doe.gov/production/ober/hug_top.html
The Human Genome Project
www.ornl.gov/TechResources/Human_Genome/tko/index.htm
www.ornl.gov/hgmis/
Human / Mouse Homology Relationships ( Synteny )
www.ncbi.nlm.nih.gov/Homology/
Huntington Disease
http://neuro-www2.mgh.harvard.edu/hdsa/hdsamain.nclk
Associazione Italiana Corea di Huntington
Incontinentia Pigmenti
www.rarediseases.org
Institutional Review Board Guidebook,1993Office for Protection from Research Risks - NIH
Office for Protection from Research Risks - NIH
www.nih.gov/grants/oprr/irb_guidebook.htm
Kidney Disease
www.kidney.org
Liver Disease
http://gi.ucsf.edu/alf/alffinal/homepagealf.html
www.liverfoundation.org
London Dysmorphology Database (LDDB):includes a clinical description of more than 3000nonchromosomal, multiple congenital anomaly syndromes.
www.oup.co.uk/isbn/0-19-268796-4
Lung Disease
www.lungusa.org
Marfan Syndrome
www.marfan.org
March od Dimers Bird Defects Foundation
www.modimes.org
Med Help International
www.medhelp.org
Medicinal Research Council (UK)
www.mrc.ac.uk
Medicines Control Agency (UK)
www.open.gov.uk/mca/mcahome.htm
Mediconsult
http://mediconsult.8media.org
Mental Retardation
www.aamr.org
A mitocondrial genome database (human)
www.gen.emory.edu/mitomap.html
Mitocondrial Disease
http://biochemgen.ucsd.edu/mmdc/index.htm
Muscolar Distrophy
www.mdausa.org:80
National Cancer Institute
http://cancertrials.nci.nih.gov
National Center for Biotechnology Information
www.ncbi.nlm.nih.gov
National Human Genome Research Institute
www.nhgri.nih.gov
National Institutes of Health
www.nih.gov/health
National Library of Medicine's search service provides access to over 10 million citations in MEDLINE, and other related databases and online journals
www.nlm.nih.gov
www.nlm.nih.gov/databases/databases.html
www.ncbi.nlm.nih.gov/entrez/query.fcgi/
National Organization of Rare Disorders, Inc. (NORD)
National Society of Genetic Counselors (NSGC)
www.nsgc.org
Neurofibromatosis
www.nf.org
Neuroscience
neuro.med.cornell.edu/VL/
New York Biotechnology Association
www.nyba.org
New York Online Access to Health (NOAH)
www.noah.cuny.edu
Office of Genetics and Disease Prevention (OGDP)
http://www.cdc.gov/genetics/default.htm
Office of Rare Diseases (ORD)
http://rarediseses.info.nih.gov/ord/
Online Mendelian Inheritance in Man
www.ncbi.nlm.nih.gov/Omim
Osteogenesis Imperfecta
www.oif.org
Prader-Willi Syndrome
www.pwsausa.org
Protein databank
www.pdb.bnl.gov
www.rcsb.org/pdb/index.html
Protein Information Resource
http://pir.georgetown.edu
Protein Kinase Resource
www.sdsc.edu/kinases/
Sickle Cell Disease
http://sicklecelldisease.org
Tay-Sachs Disease
http://mcrcr2.med.nyu.edu/murphp01/taysachs.htm www.ntsad.org
Tuberous Sclerosis
www.ntsa.org
Turner Syndrome
www.turner-syndrome-us.org
United State Congress: Library of Congress
http://thomas.loc.gov/home/thomas2.html
United Way Help Line
www.unitedwaydenver.org/iris/keyw_g.htm
(click "Genetic diseases)
Urea Cycle Disorders at theNational Urea Cycle Disorders Foundation (=NUCDF)
National Urea Cycle Disorders Foundation (=NUCDF)
www.NUCDF.org
U.S. Health and Human Services Department
www.hhs.gov/
Web Resources for Protein Scientists
http://faseb.org/protein/
Williams Syndrome
www.williams-syndrome.org
Wilson's Disease
www.medhelp.org/wda/wil.htm
World Health Organization (WHO)
www.who.ch/
Xeroderma Pigmentosum
www.xps.org
References: "Genetics & Your Health - A Guide for the 21 st Century Family" by Raye Lynn Alford - Medford Press (1999)"Ethics in Medicinal Research - A Handbook of Good Practice" by Trevor Smith - Cambridge University Press (1999)
"Genetics & Your Health - A Guide for the 21 st Century Family" by Raye Lynn Alford - Medford Press (1999)
"Ethics in Medicinal Research - A Handbook of Good Practice" by Trevor Smith - Cambridge University Press (1999)
